Wednesday, August 31, 2005

Caregiver Rights


As a caregiver…..

“I have the right to ask for help when needed. I should not feel guilty about not being able to do it on my own. I can ask family members for assistance.”

“I have the right to seek help outside of my family. If I am unhappy with a program, I may remove my loved one.

“I have the right to feel emotional. I may be depressed one day, but happy the next. I may cry today, but laugh tomorrow.”

“I have the right to enjoyment. This does not mean that I am not looking after my loved one but it means I need a break, so that I can better care for myself and for my loved one.”

“I have the right to find humor in situations. This does not mean that I am laughing at my loved one. It means I am making light of the situation.”

“I have the right to commend myself for this caregiver role. I am doing the best I can.”

“I have the right to vent my frustrations. There is nothing wrong with joining a support group seeking help from counselors.”

Soul Fatigue


Signs of Soul Fatigue
  1. A frequent or constant sense of feeling rushed.

  2. Difficulty making decisions.

  3. A surplus of information but lack of wisdom

  4. A sense of stagnation in your relationship with God.

  5. A decreased ability to love.

The first four lines of Psalms 23 are helpful.  If you follow the spiritual wisdom at each of these points the results will be the fifth line which is God will restore your soul.
  1. The Lord is my Shepherd

  2. I shall not want.

  3. He makes me lie down in green pastures.

  4. The good shepherd leads me beside still waters.

  5. He restores my soul.

STRESS!!!

STRESS !!!!

Family caregivers providing high levels of care have a 51% incidence of sleeplessness and a 41% incidence of back pain.  Source:  National Family Caregivers Association, Caregiving Across the Life cycle, 1998.

Tuesday, August 30, 2005

Caregiver Stress Reactions and Symptoms

Here are symptoms that you may suffer as a caregiver as a result of stress. These are all very real.

Physiological:

Increased heart rate
Increased blood pressure
Palpitations
Trembling
Muscle tension
Muscle tightness
Nausea
Dizziness
Chest pain
Perspiration
Headaches
Muscle pains
Backache
Stomach distress
Sweating
Gastrointestinal distress


Emotional:

Worry
Anger
Hopelessness
Doubt
Anxiety
Helplessness
Worthlessness
Fear
Shame
Frustration
Depression
Grief
Overwhelmed


Behavioral:

Compulsive overeating
Increase in smoking habit
Escapist drinking
Continual use of sedatives
Continual use of tranquilizers
Obsessive/compulsive behaviors
Continual job changes
Change in sleeping habits
Absenteeism in work place
Emotional outbursts
Withdrawal


Cognitive:

Memory loss
Decreased decision making
Decreased problem solving
Limited attention span
Calculation difficulties
Inability to concentrate

Caregiving produces stress in the caregiver. It is important to manage stress by taking extremely good care of yourself physically, emotionally, and spiritually.

Saturday, August 20, 2005

Dealing with Being Overwhelmed as a Caregiver

Coping With Your New Role

1. Address and Share Your Feelings
  • Support Groups

  • Church

  • Psychologist, social worker, or therapist

  • Internet chat room with other caregivers

  • National caregiver organizations

  • National or regional organizations specific to your loved one’s illness.
2. Boost your knowledge.
  • Learn everything you can about the illness.

  • Learn everything you can about caregiving and the assistance available.
Take Stock
  1. Determine the needs of the care receiver.

  2. Decide which needs you can or would like to meet on your own.

  3. Determine which needs can or must be met by others.

  4. Identify family and friends to whom you can turn for help.

  5. Establish the need for outside professional help.
How to Ask for Help -- Tips for asking family members or friends for help
  1. Sit down with them in person or find a quiet time to speak on the phone.

  2. Review the list of patient needs.

  3. Specifically discuss areas in which you think they could help.

  4. Ask them if they would like to participate.

  5. Inquire about whether they would like to help out in a particular area.

  6. Clearly explain the tasks and what they could do to help.

  7. Make sure that they understand exactly what would be helpful to you, as well as to the care receiver.

This will be an ongoing process as the needs of the care receiver change. It’s never too late to start coping, take stock, and ask for help, but it’s best to do BEFORE you get to feeling overwhelmed. Taking this action is important for preserving your health, and it will also result in your being able to provide care for a longer time.

Source: Net of Care, Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York City.

For a full discussion: http://www.netofcare.org/content/getting_started/

Praying the Lord's Prayer in Times of Trial



Last week we talked about the fact that when God gives us something to do, we always face three trials.
  • The temptation to rely on our own abilities, skills, and strength to do what it is that God has put on our plate, rather than trusting God for provision.

  • The temptation to try to control the timetable for what God has given us to do, rather than surrendering to God’s timing.

  • The temptation to worship other things or even to cease to worship God, rather than worshipping him and serving him alone.

I find that when I regularly include the Lord’s Prayer in my times of worship, following the example of Christians throughout the centuries in praying the prayer Jesus gave to the disciples, I find strength and assurance for dealing with the three trials.  

The Lord’s Prayer provides this strength and assurance for many reasons.
  • It’s an act of providing worship to God that we can do without props or other people – we know it by heart.

  • It embodies the essence of our relationship with God.

  • It specifically addresses all three trials, and the temptations themselves.

  • It naturally causes us to spend time in meditation as we are led to expand on the key truths and relate them to our current situations.

  • The sense of ritual, praying the same thoughts that Jesus and his followers have prayed for centuries, produces a sense of belonging and peace that is priceless.  I think that’s why reverting to the old King James phrasing comforts so many of us – it’s timeless.

  • Praying the Lord’s Prayer focuses our consciousness on God.

Here are some thoughts that invariably enter my heart as I pray the Lord’s Prayer.

Our Father, which art in Heaven reminds me that I have a loving Abba as near as the air that surrounds me and which I breathe.

Hallowed be thy name, thy kingdom come, thy will be done on Earth as it is in Heaven speaks to the war with all of its battles that is raging here on Earth, and the fact that I am aligning myself with God’s side, wanting his name to become holy, his kingdom rule to prevail, and his desires to be followed on this Earth, just as they are in Heaven.

Give us this day our daily bread reminds me that God is my provider for everything, even what I eat, and that further, all that I need to be concerned about is today’s provision.  Life is a day-at-a-time journey.

And forgive us our trespasses, as we forgive those that trespass against us recognizes that I fail in word and action to respect and honor God just as others fail to respect and honor me, and that my relationship with God is kept intact by his forgiveness of my trespasses just as my relationship with other people is kept intact by my forgiving their wrongs against me.

And lead us not into temptation, but deliver us from evil reminds me that my heart and mind are the battleground for the war that is raging between good and evil, and that I need Abba to guide my steps and provide my deliverance.

For thine is the kingdom and the power and the glory forevermore reassures me that God is in charge, that he is the source of all strength, and that he gets credit for everything – and that I’m not in charge, am not the source of strength, nor worthy of any credit.

Amen is my affirmation that I want all of this to be so, and that therefore I am surrendering myself to him.

You’ll find this familiar prayer in Matthew 6:9-13.  Pray it and meditate on it regularly during the day.  Your worship to God in this way will do much to help you persevere through the trials that naturally come when God has given you something to do.

Monday, August 15, 2005

Helpful Web Resources

Here are some very helpful web resources:

  • Caregiving.org: This site is provided by the National Alliance for Caregiving. Especially helpful is the Family Caregiving 101 section of the website. There you'll find information on the stages of caregiving, how to manage your caregiving, and links to places to find help. Don't miss the top 10 questions link!
  • Medicine.net: This site has several articles on caregiving, and in particular on caregiver stress.

The Grief Cycle and Caregiving

Anytime we suffer a loss in our lives, we go through the grief cycle.

The grief cycle is composed of a series of emotions:
  • Denial
  • Anger
  • Bargaining
  • Depression, and
  • Acceptance.

Any loss can trigger the grief cycle: job loss, loss of health, death of a family member or friend, loss of a pet, loss of a home, etc. Even when we think we have prepared for the loss, we still go through the grief cycle. Often, in fact, if we know that we’re going to experience loss, we’ll go through the cycle both before and after the actual loss event.

We may go through the emotions stepwise, but frequently we’ll bounce back and forth between emotions, and sometimes be in two emotional states simultaneously. It may require months and often years to move through the cycle to complete acceptance. You may think you are at acceptance only to wake up the next morning in one of the other states.

Family Caregivers go through the grief cycle while caregiving, and Care Receivers also go through the grief cycle. If there are multiple family caregivers, each is going through the cycle in their own way and in their own timing. Everyone involved may be in a different place at any given time. Understanding what’s happening can be very helpful. Not understanding can be hugely frustrating.

As a Caregiver, you will not only be grieving the loss of your family member’s health and ability to care for themselves, you will also grieve the loss of your freedom and ability to get on with your life. You are dealing with a double loss. Often, Caregivers feel guilty for even thinking about the loss of their freedom and the impact on their lives and for having these natural feelings of loss. These emotions are real, natural, and honest, and must be experienced to move to acceptance.

The Care Receiver is often suffering multiple losses: health, loss of ability to care for themselves, loss of home, loss of pets, etc.

Strategies for Navigating the Grief Cycle

Recognize that the Grief Cycle is real, normal, and natural.

God designed us to grieve in times of loss. Grieving is healthy. In turn, that means that times of denial, anger, bargaining, and depression are healthy emotions. You should not feel guilty for experiencing these emotions, nor should you deny yourself the opportunity to feel them.

You must spend some time in the grief cycle to reach the state of acceptance – being able to move forward with your life. You don’t have to get to acceptance to function and to do what you need to do, but you will not be able to completely move forward until you have experienced the entire cycle. The grief cycle cannot be compressed in time – it has a timing of it’s own. You cannot force yourself to acceptance. In fact, grief avoidance can have severe physical and emotional consequences.

Having others you can safely share your feelings and emotions with is extremely important. Generally you can’t do that with the person you are caring for because you’re trying to put on a good face for them.

  • Every caregiver should be part of a support group of other caregivers. Being able to share what you are going through with others experiencing the same things is extremely healthy and healing. It will make you a more effective caregiver, and extend your ability to provide care over a longer time.
  • Every caregiver should discuss their caregiving and their health situation regularly with their own physician.
  • Find a friend, a minister, or a counselor you can visit with at regular intervals to share your feelings and struggles.

Having some personal time for prayer and meditation, as well as for rest and recreation, is vital. Enlist other family members, friends, respite care services or paid help to create personal time.

If you get stuck in any one of the grief states, reach out for help in moving forward. Depression is the greatest danger for caregivers, especially those caring for someone with dementia or brain injury. As many as half of caregivers in this area suffer clinical depression. Clinical depression is easily diagnosed and treated. Your family physician should be your first stop.

Caregiving is a Wilderness Experience

Adulthood is a series of experiences to help us recognize our true existence as spiritual beings and to provide spiritual growth in anticipation of our eternal destiny.

When God gives us something to do, he also allows us to enter a time of temptation and testing. Even his own son, Jesus, went through this time of temptation and testing.

Then Jesus was led out into the wilderness by the Holy Spirit to be tempted there by the Devil. For forty days and forty nights he ate nothing and became very hungry. Then the Devil came and said to him, "If you are the Son of God, change these stones into loaves of bread." But Jesus told him, "No! The scriptures say, '‘People need more than bread for their life; they must feed on every word of God.'" ’

Then the Devil took him to Jerusalem, to the highest point of the Temple, and said, "If you are the Son of God, jump off! For the Scriptures say, '‘He orders his angels to protect you. And they will hold you with their hands to keep you from striking your foot on a stone.'" ’ Jesus responded, "“The Scriptures also say, '‘Do not test the Lord your God.'" ’

Next the Devil took him to the peak of a very high mountain and showed him the nations of the world and all their glory. "I will give it all to you," he said, "if you will only kneel down and worship me." "Get out of here, Satan," Jesus told him. "For the Scriptures say, '‘You must worship the Lord your God; serve only him.'" ’ Then the Devil went away, and angels came and cared for Jesus.
(Matthew 4:1-11 NLT)

When God gives you something to do, you will have these same three temptations.
  • The temptation to rely on your own abilities and strength rather than trusting in God to provide.
  • The temptation to try to take control of the timetable for what God has given you to do rather than surrendering to God'’s timing.
  • The temptation to choose other objects of worship, rather than worshipping God and him alone, or in some cases to cease worshipping God.

The struggle with these temptations is the fuel for spiritual growth. Family Caregiving is definitely one of these times. God has given you something very important to do --– something likely that only you can do. Recognize that it is another step in your spiritual journey, and call on the strength of Jesus to help you:

  • Rely on God'’s provision for all your needs.
  • Surrender to God'’s timing in all things.
  • Worship God, serving him only.

As your church family, we'’re here to help you in every way we can, but most especially to support you in the spiritual testing you'’ll encounter.